Detailed Symptom Results

All data must be read in conjunction with the survey limitations.

The table below shows the percentage of respondents who rated the specified symptom as not a symptom, mild, moderate or severe at each point in the benzo journey. The symptom category that was least troublesome at each stage has been marked in blue and the symptom category that was being reported as most troublesome is marked in yellow. For instance, before starting benzos, the dermatological symptoms category was reported as the least troublesome, with 68% of respondents saying that they did not rate this as a symptom. At the same stage the psychiatric group of symptoms were rated the most troublesome, with 31% rating their experience with this symptom as severe.

Before Starting Benzos	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	55	68	48	50	49	66	24	23	59
Mild	20	17	24	21	22	19	19	21	20
Moderate	15	10	18	16	16	12	30	25	14
Severe	11	5	9	13	13	3	26	31	8

At Time Decided to Withdraw	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	30	35	31	25	21	38	13	9	39
Mild	29	26	24	21	21	25	21	16	23
Moderate	22	26	28	25	27	23	27	29	25
Severe	19	12	17	29	31	13	39	46	13

Worst Point in Withdrawal	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	13	20	17	4	5	27	3	2	24
Mild	17	17	21	9	10	25	11	10	20
Moderate	27	25	28	20	21	27	14	21	29
Severe	43	38	34	68	64	21	71	66	27

End of taper	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	21	30	25	13	10	35	10	8	34
Mild	28	23	31	24	24	28	24	23	28
Moderate	51	26	23	23	26	21	18	21	20
Severe	0	21	20	40	39	15	47	49	18

Worst Point in Recovery	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	25	31	33	15	10	46	16	18	45
Mild	30	31	31	21	22	24	24	13	21
Moderate	22	24	21	19	24	15	13	25	22
Severe	22	13	15	45	43	15	46	43	12

12 Months off Not Well	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	11	17	11	2	2	23	11	6	17
Mild	32	26	40	15	11	45	23	23	43
Moderate	30	30	30	43	45	19	34	38	28
Severe	28	28	19	40	43	13	32	32	13

24 Months off Not Well	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	19	19	31	0	4	19	8	12	15
Mild	38	31	38	31	19	50	19	23	54
Moderate	27	23	15	42	46	23	54	54	23
Severe	15	27	15	27	31	8	19	12	8

36 Months off Not Well	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	13	7	27	0	0	33	20	20	20
Mild	53	40	47	33	27	40	27	27	53
Moderate	13	27	20	40	53	27	40	47	20
Severe	20	27	7	27	20	0	13	7	7

At Time of Deciding to Stay on Benzos	Cardiovascular	Dermatological	Gastrointestinal	Musculoskeletal	Neurological	Genitourinary	Paradoxical	Psychiatric	Respiratory
	%	%	%	%	%	%	%	%	%
Not a Symptom	32	45	30	32	14	45	11	7	45
Mild	41	25	39	23	43	32	50	43	27
Moderate	16	23	20	27	18	9	25	25	11
Severe	11	7	11	18	25	14	14	25	16

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Last updated 21 July 2020