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Hi everyone,

I haven't posted since I completed my taper on 8/5/08. I was wanting to wait awhile, hoping to see improvement. I would have to say that I am better now then I was the day I stopped my taper. I was on diazepam for about a year and then I was taken off that completely and put on phenobarbital and was to taper off that.

After about 10 days I had a bad reaction to that and was then on nothing for 5 weeks. My withdrawal got horrible, the anxiety was unreal and like nothing I had every experienced. After 5 weeks I was put back on diazepam but on a much lower dose.

Originally I was on 15mg/day but I was only put back on 5mg/day. Unfortunately that Doctor didn't know what he was doing and I didn't find this website until after the fact. From Dec. 07 until Aug of this year I did a slow taper off the 5mg.

My taper was horrible and very challenging. I starting tapering .5mg every two weeks but once I got down to around 2.5mg, I started tapering .2mg every 12 days or so. The thing I found very hard was my symptoms didn't always get worse with a cut, but out of the blue would get so much worse. It's like my body was playing catch up from all the cuts and I know only going back on 5mg made things very hard.

I'm not going to go into detail about all the symptoms I had but I will say how I am now. I have had this constant movement/bobbing sensation in my head since about April. It is still there 24/7 but it has gotten less intense. My balance use to be horrible, but now it isn't as bad. I'm still unable to work and I can't handle many things as far as going out and being in public but I can for sure handle more today than I could three months ago. I feel once this movement crap stops completely, I will be a different person. I can't wait to be able to work again and just lead a normal life.

As horrible and challenging as this past year has been, I am glad I am no longer on that evil pill and I know that eventually I will be back to my normal self. Throughout my taper I had to take baths not showers because of my balance but now I can take showers. My mom had to help my with almost everything around the house, but now I can pretty much take care of those things. I never drove at all during the taper, but now once in awhile I will drive. I can only go short distances as I feel the movement so much, especially when the car isn't moving!! I can handle more interaction with friends when at one time I didn't even want to talk to them over the phone. My sleep is still pretty restless but several months ago I would practically lay awake all night!

I'm just giving some examples I can think of to let those know who are doubting their recovery that it does come. It is slow, tremendously slow for me but I'm hoping in another three months I can write another post with much better news.

I wanted to thank the mods for all of their help along with everyone else that helped me out at one time, I really appreciate it!!!

Good luck to everyone!!!


Disclaimer:  The information contained in this website was not compiled by a doctor or anyone with medical training. The advice contained herein should not be substituted for the advice of a physician who is well-informed in the subject matter discussed. Before making any decisions about your health or treatment you should always confer with your physician and it is always assumed that you will do so.

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Last updated 21 July 2020